Are you completing this questionnaire as a patient with a rare disease, as someone who is a carer for a person with a rare disease or as a healthcare professional working with people with rare diseases? If you wish to complete the survey in more than one capacity (eg as both a patient and a carer) you should email
or calling Accent's FREEPHONE number 0800 084 2783 and we will send you another survey link.
Patient with a rare disease
Carer for a person with a rare disease
Healthcare professional working with people with rare diseases