Are you completing this questionnaire as a patient with a rare disease, as someone who is a carer for a person with a rare disease or as a healthcare professional working with people with rare diseases? If you wish to complete the survey in more than one capacity (eg as both a patient and a carer) you should email concord@accent-mr.com or calling Accent's FREEPHONE number 0800 084 2783 and we will send you another survey link.

 
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